one year ago today our world was turned upside down. a year ago today we found out that our baby girl had many different health problems. here is part of my post i made a year ago....we went to our 20 week appointment we ran into a couple things that didn't look right so my doctor sent us to mckay dee to get a better look at her. well, after a few hours of ultrasounds and talking we were told unfortunately we had to go down to primary children's to get a fetal echo. we were told she has a VERY RARE diagnosis called hederotaxi. she has some problems with her heart and her stomach is on the wrong side of her body. :( can i just tell you....it was honestly the HARDEST thing i've ever been told and had to go through. to know that the little baby inside of me has health problems that you can't do anything about until she gets here just kills me! and when she is here, it's still going to be hard. to send her into get open heart surgery at such a young age.....it seriously just kills me. but we are being as positive as we can be. we are given challenges in this life for a reason. yeah you can ask "why me" but that does no good. you can't go through life being down and negative about trials that you are given. so we are doing the best we can! we know that heavenly father will do what is best and he will take care of us and the baby. ....wow! for what we were told a year ago and the outcome that we have been blessed with is just AMAZING!!! one year ago we were told that she may not make it. we were told to not plan on seeing her or holding her when she got here. we were told to plan on a long hospital stay and that she would need open heart surgery at just a couple days old. can i just say my baby girl has proven them WRONG!!! :) she came and we were able to see her and hold her precious little (big) body. we heard her first cry that was the best thing we had heard since we found out we were pregnant!!! ten days after being born we were able to bring our miracle home....SURGERY FREE!!! WOW! six and a half months of growing and bonding with mom and dad and it was time for her first surgery. we had dreaded this day to come. but we knew it had to happen sooner or later and that it would be better to do it while she was so healthy. as we handed her over to the anes. we did not know what would happen. if it was going to be our last goodbye and hugs and kisses or if she would be just fine and come out just as perfect as she was going in. of course we had to be positive but handing your baby over not knowing what was going to happen it was hard to be positive. 6 hours later we got the phone call we had been waiting for all day. she is done and surgery went well! what a relief that was to hear that!!! our little baby truly is our little miracle and we have been SO BLESSED to have her in our lives! yes we do know that we still have trials ahead but if we continue to have faith we know everything will be just fine. the last 7 months have been the BEST 7 months of our lives!!! we just love tay MORE than anything!!! anyways, she is doing GREAT! we went to our post op appt. on wed and the docs were VERY happy with how well she is doing and how AWESOME her O2 was at an amazing 92!!!! YAY!!! here are a couple pics of what we have been up to since we began hibernating...
sponge baths :)
sitting up all alone for the first time! :)
playing with our toys! (the day after we got home and she was rolling around!!!)
layin on the couch with mommy
and wearin' mommy's shirts for jammies! hahaha
WE LOVE YOU BUG!!! :)
I can't even imagine how difficult that all was for you to go through. You are such a strong mommy! It's so great to see her happy and feeling good! She is just a doll!
ReplyDeleteYou are an inspiring person, Shaylee! I look up to you and your little family. Thanks for letting us share in a small way a bit of your little miracle. What a beautiful little baby!
ReplyDeleteShe is soooo adorable. I want Maddux to marry her :)
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