the latest news

well! it's time for our monthly post! we have been so busy we pretty much only update when we can! so this will be a long one! we had our 4 month wellness check up this month! tay had to get her 4month vaccines too! talk about KILL ME!!!! oh my heck! she had an oral vaccine and 5 SHOTS in her poor little legs!!! i've NEVER heard her cry the way she did! it pretty much broke my heart!!! poor little girl! she was a little fussy that day and the next two but she is all better now! :) she is in the 24th percentile for her weight (12lbs 9oz), 50 percentile for her height (24inches) and a little OVER the 50th percentile for her noggin! ha ha ha! she's got quite the little noggin! well i guess you would say a little big! ha ha ha. but not TOO big! :) we also had our cardio appt this month! this one i was nervous for. she had to have a sedated echo and for some reason i was nervous for her to be put to sleep. oh dear...if THAT makes me nervous then i'm in BIG trouble for what is ahead of us!!! she was not able to have formula after 8:30 so i fed her a small bottle at 7:30. she was not able to have breast milk after 10:00 so i saved up 3 days worth so i could give her a full bottle at 10! she only ate 2 ounces out of the 6!!! :( then she fell asleep until we left to go down to primarys. we checked in and got her x-rays. then we waited and waited and waited to the sedation lady to come in. at this point...2:30....she was STARVING!!!!! so we talked to her then she went to get the iv people. ha ha ha. i don't know what they are called! so they finally came in and pretty much pinned my baby down to the bed so they could find a good vein to put her iv in. TRAUMATISING!!! after 10 minutes of SCREAMING at the top of her lungs they were finally done and i was able to pick my baby up and hold her. she fell asleep as soon as i picked her up! i think they need to come up with a different way to poke the little heart babies. i'm sure all the screaming is not so good on their heart!!! any who, we started the echo and about ten minutes before they were done she woke up! ha ha ha! they gave her more medicine to keep her out of it and she just laid there with her eyes wide open looking around while they finished! then we went to recovery for half hour then we went back down to meet with dr p. well, it wasn't bad news thank goodness! after he looked at her echo he came in and said that the left side of her heart is not getting smaller like they intended that it would. that's great! but it leaves us in the middle of two options. 1-to make my baby a two ventricle heart which would include going to boston or stanford to do MAJOR surgery with a higher chance of not making it or 2-keeping her a one ventricle heart and moving on with the glenn. dr p said that he was going to present her case to everyone on wed to see what they all thought. well, he called me wed afternoon and said that 90% of the docs/surgeons said that it would be best to go with the 2nd option...keeping her a one ventricle heart. we have mixed feelings about this. yes we are happy that we won't have to go to boston/stanford for the MAJOR surgery and worrying if it will be too much for our little girl. but we are a little down about knowing that she will need a heart transplant later on in life. we've met with dr p many times and every time we have asked him how long he thinks she will go before she will need a transplant he's ALWAYS said probably at least 30-40 years! wow! that would be amazing! but yet not surprising because this little girl is FULL of surprises! :) so that is the latest. trav wants to ask dr p more questions about if we should send her info to boston/stanford and see what they think or if we should just forget about it and move on. if we do move forward with the glenn then she will have surgery in november-ish. sounds a little scary to us with it being rsv/flu season but like i said...she is FULL of surprises and she is our tough little bug! :) so i think that's about all i have for now. here's the fun part....PICS!!! :)

sitting in her bumbo playin with her toys

all dressed up for church!!! pretty much ADORABLE!!! :)

waiting for the sedation lady friend. ha ha ha

our battle wound from the iv

lookin at her bowl of cereal

not liking her first bite of cereal so much. ha ha ha

REALLY not liking her new cereal! ha ha ha!

chewing on her toy

look mom! no hands!!! :) yep....she's teething! no teefers yet but i'm sure they'll be comin soon!